Zachary's Journey Through Autism

This is a blog dedicated to updating our family and friends - those that have a love for and interest in Zachary's journey through Autism.

Thursday, January 18, 2007

Awareness vs. Privacy


Isn't it nice those times in life when decisions are made for you? When you've been struggling with the right choice and suddenly and unexpectedly your need for a decision is taken away. That just happened to me last week.

I have been really torn for the last few weeks over whether or not to leave the Autism Awareness magnetic ribbon on the back of my car or not. Immediately after we shared the news of Zachary's diagnosis with everyone I bought this magnet and placed it proudly on the rear of my car. I did this for a few reasons:
1 - I do truly believe in the need to make the public more aware of Autism. It's so widespread, and yet most people are completely unfamiliar with it.
2 - Right after Zachary was diagnosed, I began noticing these magnets and bumper stickers on cars. The very first time I saw one I had to pull over because I was crying so hard. It was immensely comforting to me to know that we were not alone here in Woodstock, GA with a child with Autism. There are others out there (tons!) and it was very comforting for me to see these people around my community. If I could be that anonymous comfort for someone on the road with me, then that alone is worth displaying the ribbon.

Now that six months or so has passed with the ribbon awareness magnet on my car, I've had second thoughts about it. I wonder if this is a hugely unfair invasion of Zachary's privacy. Yes, he's only 3 years old. And no, he wouldn't know the difference if someone looks at us funny when we get out of the car after they've noticed the Autism advertisement on my car... but is it right to hang such a personal, bold statement about a child that can't have a vote on the matter on my car? I just wasn't thinking so anymore. That would be like someone with Bipolar Disease or Depression - both recognized illnesses with diagnosis', displaying some type of sticker "advertising" that they have it. You'll never see that. It's far too personal, and truthfully doesn't make up the entirety of a person. Well neither does Zachary's autism. It goes back to an old debate of does he HAVE autism, or IS he autistic? I believe that he HAS autism, not that he IS autistic solely because autism doesn't define him in his entirety. It is a PART of who he is. So for that reason, I had about decided that it was time for me to quit invading his privacy by letting anyone who sees our car know that the child inside has autism. He also has a cute smile, an amazing memory, a talent for music, a love of Sesame Street, a fun personality, etc, etc, etc... do they make magnets for all those things too? As that would only be fair!!! :-)

SO... with the decision still pending, but leaning towards removal of the magnet, I go out on a quick shopping spree and get a car wash on Saturday, only to return home and discover that the magnet is gone. POOF! Did someone remove it from my car while I was shopping? I'm not sure. Did it come off in the car wash? It never had in the past, but who knows... the fact is that my decision was made for me, and it was great - as I knew I'd never have to regret my decision to remove it or leave it now. It was the smallest thing, but at the same time a very huge, ethical and emotional decision that I was glad I didn't have to make!

2 Comments:

Anonymous Anonymous said...

Glad you don't have to struggle anymore. Food for thought though...did you ever think that people might have thought that you're the one with autism when you get out of the car? Why assume that everyone assumes that it was your child? Hmmmm...that may have made your decision easier or it could have added an additional level of complexity.

Glad it all worked out though.

1/18/2007 10:41 AM  
Blogger Team Zachary said...

Welcome anonymous! Glad to know that I have readers :-) And you bring up a VERY good point, one that which I truthfully never even thought of. I'm in child mode with my thoughts, feelings and research about autism, because I've only dealt with it for a 2 and now 3 year old, that I haven't really reached a point of thinking about/considering all the adults out there with autism.

1/18/2007 11:13 AM  

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